Monthly Archives: July 2017

Hi, Honey, I’m home……


Sorry, sweetie! I took a wrong  turn at the quickie mart and don’t know what the heck happened๐Ÿ˜œ….somehow it turned into 2 months of no talkie to you๐Ÿ˜” Anyhoo, where should I start? Well, on the noodle front( aka: head, not pasta) I have changed a few things again, lol. It is for the greater good, I feel like I am getting a handle on on my chronic pain, and managing, instead of it taking over my/ families lives. Since last we spoke I was taking Modafinil 2 times a day for my narcolepsy,  that’s been replaced with concerta. There were a lot of reasons for switching, but the main one was it wasn’t working anymore, which unfortunately seems to happen as you become used to it, and either have to go up in dosage (I was at max, and still falling asleep), or go off and try something else๐Ÿ˜€. I have felt a vast improvement in my fatigue, mental clarity, I don’t feel as though I’m going to nap every two minutes, lol. I am enjoying this for as long as I can, it’s wonderful being awake with the other humans, lol. My migraines, 3 types,  hemiplegic, ice pick and your classic๐Ÿ‘, are getting  a bit easier to handle, well mostly because I have help sorting out a pain med regimen.i.e., Tylenol ice pick , exceed rinse for hemiplegic, etc, of course with my daily meds, too. I am changing my topiramate dosage to a minimum, to help with my fatigue symptoms, verapamil, is helping as a preventative too, keeping a lot of my nasty ones to a dull roar compared to even last year. I really feel more positive (most days, lol) about my migraine management, for lack of a better description, ha! Anyhoo, I have been dealing with some ups and downs with this whole thing, or correction my FAMILY and I have been dealing with this, and I look forward to more upbeat posts, but always want to share the good, the bad, and the ugly( me without make up)๐Ÿ˜˜๐Ÿ˜˜BAHAHAHAHAHAHA!  

Ohhhh!! I almost forgot!! I have a new neuro he put me on a couple of restrictions to see what could b triggers for me, based on others, you know like cheese, dairy, bacon, deli, nuts, fermented,  lmao I think that’s all of them, Anyhoo, the worst for me has been the dairy, although only in my coffee๐Ÿ˜˜anyone who takes topiramate knows dairy is no friend, anyways. Good news after all these restrictions, I was able to tell within less than 2 minutes I reacted with a hemiplegic migraine anything bacon, deli, ham, sausage ,code word for delicious๐Ÿ˜”๐Ÿ˜œ Truth is I have been going to a nutritionist for awhile now and getting healthy so it’s better for me anyway๐Ÿ˜˜๐ŸŽ I will def be talking more about my nutrionist in upcoming posts and sharing more about my progress. Overall, onward and upward, as I write, I feel more focused, thanx, concerta, lol, and awake, before I would be dragging around like a zombie, unable to find any words for a sentence.  I hope u find these posts informative, interesting, or if anything kills some time for ya, and hey if u know somebody with some time to kill let them know about me would ya, I realllyyyyy don’t mind being followed๐Ÿ˜‰ ciao for now, peeps, keep smiling !๐Ÿ˜€