Update on the “wink” 

Howdy, do, peeps, thought I would give an update on my lil “wink” face situation. While there has been vast improvement in recovery of my eye returning to its rightful place, lol…. It alas still looks like a lil wink, haha, good news is pain has been drastically reduced to a dull roar, with only a couple how do you do “ice pick in your brain” pains, here and there,  to remind me it might not be over just yet. 

Sooo I decided inspite of it, to put on my face, get dolled up, and ignore the ice picks, and pretend I am normal, only problem with that was….I’m not:(…..I fell asleep. When I woke up for the 3 Rd time, I hoped that was the end of it. I had taken my Modafinil, but today it definitely isn’t working. Some days have been worse some days have been WAAAAYYY BETTER, just trying to figure it all out. Especially now I am realizing that I have to look at my narcolepsy/cataplexy differently because of my hydrocephalus, and how it affects me differently when compared to someone with narcolepsy and no hydrocephalus. If you are reading this, and you have narcolepsy with hydrocephalus I would especially like to hear from you, please. Anyhoo, I continue to work on my health, and get answers where I can, every little bit helps. I see my sleep doc soon, to discuss different things I can try , and the narcolepsy/hydrocephalus combo, and how to approach it more successfully, if it’s possible:) Anyhoo, enjoy the rest of your weekend, I’m waiting for the rain to roll in, haha! Ciaos for now😘

3 thoughts on “Update on the “wink” 

  1. Love you lots lou! Stay strong !


    1. Thanx Scotty! Sure will!👍🏻


Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

The Art Classroom

A blog about Art & Design in Secondary School

Paintings of Wildlife & Nature by Rebecca Latham

Paintings by international wildlife artist Rebecca Latham. Featuring North American animals, birds, & nature in watercolor painted in miniature.

priorhouse blog

Photos, art, and a little bit of LIT.

Instant Pot Teacher

Instant Pot Pressure Cooker How To Easy Recipe Videos

your goth friend's blog

well-meaning rambles


Black Women's Lifestyle Guide | Fashion, Parenting, Entertainment News, Sex & Relationships, & Health

The Sun

The Best for News, Sport, Showbiz, Celebrities

Derriere de Soie

bra fittings and intimate apparel

Practically Imperfect In Every Way

Navigating life's journey and being practically imperfect at it!

Atypical 60

A Typical Blog. A Typical Woman. A Typical Take On Life. With An Atypical Twist!






Sick of sick of sick of

Chris Osborne Adventures

Driving around Australia’s best campgrounds and attractions

Quirky Cat's Fat Stacks

...of Books (Book Review Blog)

Mws R Writings

Poet/Writer/Food Lover/Music Lover/Animal Lover/"EMOTION HOARDER"

Purple Almond Wellness

Your Middle-Age Pathway to brain health, wellness and quality of life.

93.9 WKYS

Washington DC's Hip-Hop & R&B Radio Station | DMV radio station, DMV news and events, DC events, new hip-hop music, new R&B music, entertainment news, national news, lifestyle advice, and exclusive celebrity interviews.

%d bloggers like this:
search previous next tag category expand menu location phone mail time cart zoom edit close