I got the “wink” face/(


Now and again, weather related, sometimes, when I’m tired, when I’m not, when I’m happy, sad, angry, whatever the case, and on those certain occasions, I get what I actually have right now, and have decided to call my “wink” face.


In an instant, my right eye, sometimes the right side of my face, and even my body will go “paralysed” for minutes, hours, I believe the longest was a few days for the body.I will feel a tingling, burning, in my arm, or leg, til they droop like a rag doll, and a heaviness in my face like there is a weight hanging on it. For the longest time, before blogging, I just thought and so did my doctors, that it was migraine related, or remaining damage from delayed hydrocephalus surgery, causing more damage to my brain and nerves, basically I figured this is what I am stuck with, pain and paralysis. Anyhoo, after reading through some fellow narcoleptics, migraine, and hydrocephalus blog’s, it seems there might be a corolation between my intermittent paralysis and my narcolepsy. For years I have had these weird sensations like hair hurts, stings to breathe, ice cold eyeballs, freezing roof of my mouth, right side of my mouth no feeling, blindness in right eye momentarily, sleeping abruptly, stabbing, pain in my jaw, side of head,  pain in the side of my forehead, body paralysis, slurred speech, over ten years of so many weird symptoms, so many specialists, without any real answers, its frustrating for all of us, but now its somehow better since my brain surgery, like a new lease on life,getting time to sort myself out, lol:)Anyhoo, I can’t rule out migraine either, could be both or a three for, lol, Anyhoo, just needed to share about my
” wink” cuz its giving me a real problem todayπŸ’•
Please enjoy the beautiful summer day for me!🌸🌸

P.S. putting on eyeshadow is a real challenge, lmao! Good thing my younique party isn’t over just yet;)

6 responses »

    • Thanx very much for your comment, and yes I hope so, too:) It seems like we might have some answers but I am not so sure I will ever know. Unfortunately because I have a few different things going on all at once, it’s been tricky to determine what exactly is the culprit that is causing all this. After my brain surgery,ETV, for my hydrocephalus, I was like a new woman, immediately felt 110% better, had no paralysis, no symptoms, nothing, off the medication for pain, it was wonderful, for 8 amazing months, then things started to deteriorate and return as they once did in a matter of a couple of months, to where we are now, back to some medications, and familiar weird pains and paralysis again, but I am hoping for something new to fix this soon:) thanx again for your comment, it’s appreciated!


  1. I am Lou’s brother and these conditions absolutely control every aspect of her life . I hate seeing her cry and be in pain from things that are beyond her control and little is known . Honestly she gets migraines that would send most of us over the edge . I cannot even imagine what it is like for her everyday . Basically all i can do is be there as much as i can and do what i can to help , which is next to nothing really . But i love her and whatever she goes through in life , I am there .

    Liked by 1 person

    • Thanx, Scott, I appreciate having your support, and kindness when I’m going through a rough patch, lol. Todd and you are the lucky ones that get to see all the “fun” stuff that happens to someone with hydrocephalus,narcolepsy and migraines:) Well at least it’s never boring, haha! Actually, I could handle a little boring right about now….. Thanx, bro, and my sweetie, Todd , our girls, for your love and kindness and support through all of this crap I go through.


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